Medical gaslighting How to get the care you deserve in a system that makes you fight for your life

Ilana Jacqueline

Book - 2024

"With expert advice and stories from women across the medical spectrum who fought medical gaslighting and lived to tell their stories, patient advocate (and rare disease patient), Ilana Jacqueline provides a combat guide for increasing your confidence--and success--when advocating for your health"--

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Subjects
Published
Dallas, TX : BenBella Books, Inc [2024]
Language
English
Main Author
Ilana Jacqueline (author)
Physical Description
xiii, 249 pages ; 23 cm
Bibliography
Includes bibliographical references (pages 247-249).
ISBN
9781637745397
  • Chapter 1. Why We Need a Combat Guide
  • Chapter 2. Defining Medical Gaslighting
  • Chapter 3. The Causes of Medical Gaslighting
  • Chapter 4. How to Recognize Medical Gaslighting
  • Chapter 5. The Consequences of Medical Gaslighting
  • Chapter 6. A Deep Dive into Medical Bias
  • Chapter 7. Preparing for the Appointment
  • Chapter 8. Responding to Medical Gaslighting During the Appointment
  • Chapter 9. Taking Action After Medical Gaslighting
  • Chapter 10. The Power and Predicament of the Electronic Medical Record
  • Chapter 11. Pain Management: Fighting for Your Quality of Life
  • Chapter 12. Medical Trauma: Surviving the Aftermath of Medical Gaslighting
  • Chapter 13. The Audacity
  • Acknowledgments
  • Notes
Review by Publisher's Weekly Review

This emphatic guide from Let's Feel Better blogger Jacqueline (Surviving and Thriving with an Invisible Chronic Illness) provides advice on how women can overcome the dismissiveness of unsympathetic doctors to receive necessary care. Born with hypogammaglobulinemia, a rare immune deficiency disease, Jacqueline recounts her struggles to persuade care providers to take her pain seriously, noting that she wasn't diagnosed until age 19 because doctors were convinced her problems were "all in your head." To prevent such dismissiveness, Jacqueline recommends women dress for each appointment like it's a job interview, but avoid wearing cosmetics, since doctors might reason "they couldn't be that sick if they spent hours doing their makeup." Suggestions on what to do during an appointment stress keeping one's cool, since getting worked up might be noted in medical records that future doctors will see. Patients might also bring a journal, photos, or other evidence documenting their symptoms, or invite a loved one to serve as an advocate. Jacqueline's personal anecdotes offer infuriating glimpses into the medical profession's hubris (After getting pressured into undergoing an emergency procedure with insufficient anesthetic, Jacqueline exclaimed mid-operation she was in severe pain, to which a nurse replied, "You're not"), as well as solid advice to help patients voice their needs. This will be a salve for women tired of unjustly skeptical doctors. (Oct.)

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