Review by Booklist Review
The phrase, abusive medical experiments on human beings evokes terror. When desperately ill and vulnerable people are subjected to unethical research protocols and treatments, who's the watchdog for such wrongdoing? In bioethicist Elliott's opinion, that responsibility too frequently falls on a small number of morally courageous whistleblowers. He recounts stories about dangerous, unethical physician-researchers and shares interviews with some conscientious whistleblowers who called out the culprits' inexcusable actions. At the Willowbrook State School in New York, a study of hepatitis involved purposely injecting intellectually disabled children with the virus. In New Zealand, women with cancer in situ of the cervix were misled by a doctor into believing they didn't require any treatment. In Tuskegee, the Public Health Service lured Black men suffering from syphilis into an experiment in which no antibiotic for the infection was provided. In Cincinnati, a physician carried out research that subjected cancer patients to total body irradiation known to be without benefit for them. In these cases and others, whistleblowers summoned integrity, perseverance, and a commitment to justice to uncover misconduct despite considerable cost to their careers, reputations, well-being, and personal lives. Elliot's exposé of unconscionable medical experiments pays tribute to the often wounded truth tellers who unmask these appalling practices.
From Booklist, Copyright (c) American Library Association. Used with permission.
Review by Publisher's Weekly Review
Medical research whistleblowers expose unethical studies for their own peace of mind, though doing so often leaves them feeling isolated and betrayed, according to this riveting study. Bioethicist Elliot (White Coat, Black Hat) digs into the whistleblower mindset by profiling six of them and reflecting on his own daunting experience exposing a psychiatric drug study that resulted in a research subject's suicide. His most notable interviewee is Peter Buxton, who blew the whistle on the notorious Tuskegee experiment, in which Black men with syphilis went untreated in a study designed to track the disease's progression. Despite spending seven years battling to end the experiment, Buxton goes unmentioned in most accounts, partly because of the unusual way he became involved--as a syphilis contact tracer in 1970s San Francisco, he stumbled upon Tuskegee almost by happenstance. Buxton stands out among Elliot's subjects for having come through emotionally unscathed--he is serene in his certainty that "Nazi medicine" must always be opposed, and thus that his only choice was to fight. But the same inevitability was a source of anguish for the others, who perceived themselves as hopelessly boxed in; whistleblowing was "the only choice they had." Detailing the extreme pressures to stay loyal that whistleblowers face, Elliott paints a damning portrait of the medical community's workplace culture. Readers will be outraged and enthralled. (May)
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Review by Kirkus Book Review
A striking account of medical malfeasance and the whistleblowers who have fought against it. Though he graduated from medical school, Elliott, author of White Coat, Black Hat, never practiced and now teaches philosophy, including a course on scandals in medical research and those who blew the whistle. In Hollywood movies, whistleblowers often struggle courageously before crushing the villain. In reality, they generally lose their jobs, pay their own lawyers' fees, and, blackballed within their profession, disappear into obscurity. Elliott's account of a handful of experiments makes for fascinating yet painful reading. In every case, many participants disapproved but kept quiet. The author concentrates on those who spoke up, and it is not a pretty picture. He begins with the infamous Tuskegee study, which began in 1932. "For forty years," writes Elliott, "the US Public Health Service had deceived and exploited hundreds of poor Black men with syphilis." From the late 1940s through the 1980s at Willowbrook, the massive Staten Island institution for children with intellectual disabilities, researchers deliberately infected children with hepatitis on the excuse that they would have gotten it anyway. A 1960s Pentagon-financed study at Cincinnati Medical Center aimed to determine how much radiation American soldiers could withstand. All subjects developed radiation sickness, and many died. Perhaps the most grotesque researcher in Elliott's harrowing narrative was Paolo Macchiarini, a charismatic, possibly psychopathic surgeon who became an international celebrity for developing a synthetic trachea that could replace one destroyed by cancer or infections. After years of fruitless whistleblowing, it finally became clear that the replacement trachea was worthless; all patients died after prolonged suffering. Elliott's whistleblowers have a spotty record; many victories were partial or occurred long after the fact; some failed; none prospered from their efforts. "Whistleblowing is a poor mechanism for institutional reform," he writes, and "full-blown success" is difficult to find. A disturbingly eye-opening must-read. Copyright (c) Kirkus Reviews, used with permission.
Copyright (c) Kirkus Reviews, used with permission.
