I know you're in there Winning our war against autism

Marcia Hinds

Book - 2020

Tells the true story of how, through diet, applied behavior analysis, consistent and rigorous medical treatment, and more, Ryan's family was able to overcome autism. It took a lot of trial and error, but today Ryan is an aerospace engineer, has friends, and lives a happy "typical" life. His recovery wasn't miraculous, but instead the result of getting proper medical care, and his parents never taking "no" for an answer. Includes examples and actionable steps to get your child the treatment and care that could help them beat autism.

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Subjects
Genres
Informational works
Handbooks and manuals
Published
New York, NY : Skyhorse Publishing [2020]
Language
English
Main Author
Marcia Hinds (author)
Other Authors
James B. Adams (writer of foreword)
Physical Description
xxvi, 368 pages ; 24 cm
Bibliography
Includes bibliographical references.
ISBN
9781510748255
  • Preface by My Son
  • Foreword
  • Introduction: Don't Believe Everything You're Told
  • Part 1. Our Arrival on Autism Island
  • 1. We Had No Idea Ryan Would Change Us Forever
  • 2. It's a Boy!
  • 3. Life Seemed Perfect and Then the Doubts Started
  • 4. The Signs Were There but We Didn't See Them
  • 5. Hanging On By My Fingernails
  • 6. Road Rage in a Buffet Line
  • 7. Nothing Was Normal Anymore
  • 8. Megan Had the Answer Before We Did
  • 9. I Can't Pretend This Isn't Happening Anymore
  • Part 2. A Diagnosis and a Prescription to Nowhere
  • 10. Please Let This Be Anything Else
  • 11. Our Initial Search for Answers
  • 12. No Instant Cures and Many Missteps
  • Part 3. Searching for Solutions
  • 13. Thinking Outside the Lunchbox
  • 14. Everybody Had a Theory but Nobody Agreed On Anything
  • 15. Finally a Doctor with a Plan
  • 16. Testing, Testing, 1-2-3 and More Testing
  • 17. Dr. Harvey, AKA the Cookie Monster
  • 18. Getting Better Takes Time
  • Part 4. Escape from Autism Island
  • 19. Applied Behavior Analysis-To Do or Not to Do, That Is the Question
  • 20. Mindi Changes the Game
  • 21. The Doctor Who Saved Ryan and Why I Cancelled Our Next Appointment
  • 22. Medical Treatment Alone Was Not Enough
  • 23. The Not-So-Famous "Dr. Phil" Takes Over
  • 24. Gena, Babysitter Extraordinaire
  • 25. It Took All of Us and Then Some to Help Ryan
  • 26. Pam Changed Ryan's Life and He Changed Hers
  • Part 5. Conquering the New World
  • 27. School, IEP Meetings, and Other Challenges
  • 28. Everything Ryan Needed to Know He Didn't Learn in Kindergarten
  • 29. Sometimes It's Better to Keep Your Mouth Shut
  • 30. Isn't First Grade Supposed to Be Fun?
  • 31. Things Didn't Turn Out Like We Planned in Life or Second Grade
  • 32. Almost Normal, but Not Normal Enough
  • 33. The Social Skills are the Last to Come
  • 34. Middle School was Bullying at Its Worst
  • 35. The New and Improved Ryan in High School
  • 36. Applying to College-Could They Make It Any Harder?
  • 37. The Most Important Thing Ryan Learned in College Was Not Engineering
  • Part 6. Can a Family Survive Autism?
  • 38. Will Our Marriage Make It?
  • 39. Why Couldn't I Just Be a Dad?-By Ryan's Father, Frank
  • 40. There's Never Enough of Me to Go Around!
  • 41. Why Couldn't I Just Be a Mom?
  • Part 7. Are We There Yet?
  • 42. Are We Ever Done with Our Kids? No!
  • 43. If You Don't Know Where to Start, Start Here
  • Epilogue: We Must Win This War!
  • Part 8. Appendices and More Info
  • Appendix I. Frank's Letter to the Doctor Who Diagnosed Ryan
  • Appendix II. Autism-The Real Story Needs to Be Told
  • Appendix III. Autism Groups ... Another Way Off the Island
  • References
  • Bibliography
  • Acknowledgments
  • About the Author

Excerpt from Chapter Four Ryan was the toddler from hell! Normal activities of daily life were now confrontations. Doing simple things such as putting on shoes or a coat were more than difficult for Ryan and completely frustrating for me. Ryan confused me. There were many incidents and behaviors to indicate that my son was struggling developmentally, but I spent most of my time trying to justify his behavior. I pretended his extreme intelligence caused these immense challenges to our family's daily life. Any connection between Ryan having a meltdown over brushing his teeth and Ryan having superior intelligence was questionable. But that's how I coped. Making that connection comforted me and reduced my concerns about him. Dressing Ryan was always a struggle of wills. He always wanted to play and eat before ever considering getting dressed. I compromised back then and let him eat immediately after he opened his eyes. However, on the days when the needs of other family members meant he needed to get dressed before playing and eating, a battle ensued. "Mr. Touchy Feely" only agreed to clothing that felt soft and hated anything with buttons. Wearing jeans was out of the question, and every tag needed to be cut out of every shirt. Ryan needed to do things in the same order--always his order--and the way that he decided they should be done. When I put on Ryan's coat, he wouldn't go outside unless it was zipped all the way to the top. He had to wear a hood and never wore a hat. To protect his hands from frostbite, I had to fight him each and every time to make sure he wore mittens during our cold Minnesota winters. There were so many weird things about our daily life with Ryan. But doing things differently was already the norm for us. We didn't notice the absurdity of all the things we did almost subconsciously to prevent Ryan from having another over-the-top tantrum. Excerpted from I Know You're in There: Winning Our War Against Autism by Marcia Hinds All rights reserved by the original copyright owners. Excerpts are provided for display purposes only and may not be reproduced, reprinted or distributed without the written permission of the publisher.