The boy who felt too much How a renowned neuroscientist and his son changed our view of autism forever

Lorenz Wagner

Book - 2019

"An international bestseller, the story behind Henry Markram's breakthrough theory about autism, and how a family's unconditional love led to a scientific paradigm shift. Henry Markram is the Elon Musk of neuroscience, the man behind the billion-dollar Blue Brain Project to build a supercomputer model of the brain. He has set the goal of decoding all disturbances of the mind within a generation. This quest is personal for him. The driving force behind his grand ambition has been his son Kai, who suffers from autism. Raising Kai made Henry Markram question all that he thought he knew about neuroscience, and then inspired his groundbreaking research that would upend the conventional wisdom about autism, expressed in his now-fam...ous theory of the Intense World Syndrome. When Kai was first diagnosed, his father consulted studies and experts. He knew as much about the human brain as almost anyone but still felt as helpless as any parent confronted with this condition in his child. What's more, the scientific consensus that autism was a deficit of empathy didn't mesh with Markram's experience of his son. He became convinced that the disorder, which has seen a 657 percent increase in diagnoses over the past decade, was fundamentally misunderstood. Bringing his world-class research to bear on the problem, he devised a radical new theory of the disorder: People like Kai don't feel too little; they feel too much. Their senses are too delicate for this world"--

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Subjects
Published
New York : Arcade Publishing [2019]
Language
English
German
Main Author
Lorenz Wagner (author)
Edition
First English-language edition
Physical Description
222 pages ; 22 cm
ISBN
9781948924788
  • I. The Mystery
  • 1. Is That Your Kid?
  • 2. The Boy Who Changed Everything
  • 3. The Check
  • 4. Evaluating Kai
  • 5. The Suspicion
  • 6. San Francisco
  • 7. The Cobra
  • 8. The Fox
  • 9. Lynda Sees It First
  • II. The Hunt
  • 1. Powerless
  • 2. Saved from the Wastebasket
  • 3. Kamila, the Astronaut
  • 4. A Strange Boy
  • 5. Doubt
  • 6. Don't Cross That Line
  • 7. Back in the Land of the Special People
  • 8. Tania Can't See It
  • 9. Last Chance
  • 10. The Tree
  • III. Understanding
  • 1. How Kai Saw the World
  • 2. What Have We Done?
  • 3. No Window Seat?
  • 4. Counterintuitive
  • 5. Letters
  • 6. Building a Brain
  • 7. Fighting with Colleagues
  • 8. Monica Is Crying
  • 9. Pioneers and Child Prodigies
  • 10. Great Expectations
  • 11. Needed
  • 12. Beloved Kai
  • Acknowledgments
Review by Library Journal Review

Autism diagnoses have risen dramatically in the last decade, and researchers are hard at work looking for its causation. Enter the subject of journalist Wagner's new book, Henry Markram, the neuroscientist behind the Blue Brain Project, which aims to build a supercomputer model of the brain, inspired and driven by Henry's son, Kai, who has autism. Kai's disability made Markram question everything he knew about the brain, and this questioning later shook the autism research world when Markram introduced his Intense World Syndrome theory, upending the prevailing worldview that individuals with autism lack empathy. Instead, postulates Markram, they feel too much. VERDICT Wagner does an exceptional job of mixing biography with complex yet accessible neuroscience. Essential for parents, educators, physicians, and specialists working with children of all ages.--Virginia Johnson, John Curtis P.L., Hanover, MA

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