The last ocean A journey through memory and forgetting

Nicci Gerrard

Book - 2019

"From the award-winning journalist and author, a lyrical, raw, and humane investigation of dementia that explores both the journey of the person who lives with the condition and that of their loved ones. Diagnosed with dementia, Nicci Gerrard's father, John, continued to live life on his own terms, alongside the disease. But when an isolating hospital stay precipitated a dramatic turn for the worse, Gerrard, an award-winning journalist and author, recognized that it was not just the disease, but misguided protocol and harmful practice that cause pain at the end of life. Inspired by his memory to seek a better course for all who suffer with the disease and those who love them, Gerrard became a relentless campaigner. The Last Ocean ...is Gerrard's attempt to investigate what dementia does to both the person who lives with the condition and to their caregivers. Dementia is now one of the leading causes of death in the West, and this necessary book will offer both comfort and a map to those walking through it. While she begins with her father's long slip into forgetting, the writing expands to elegantly investigate dementia writ large. It's a raw but literary look at caring for someone who has been robbed of their selfhood. Gerrard gives shape both to the unimaginable loss of one's own faculties, as well as to the pain of their loved ones. Her lens is unflinching, but Gerrard takes great pains to honor her subjects and to find the beauty and the humanity in their seemingly diminished states"--

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Subjects
Genres
Biographies
Published
New York : Penguin Press 2019.
Language
English
Main Author
Nicci Gerrard (author)
Physical Description
254 pages ; 22 cm
Bibliography
Includes bibliographical references (pages 247-252).
ISBN
9780525521969
  • Beginnings
  • 1. Facing Up
  • 2. Getting Older
  • 3. The Brain, the Mind and the Self
  • 4. Memory and Forgetting
  • 5. The Diagnosis
  • 6. Shame
  • 7. The Carers
  • 8. Connecting through the Arts
  • 9. Home
  • 10. The Later Stages
  • 11. Hospitals
  • 12. At the End
  • 13. Saying Goodbye
  • 14. Death
  • Beginnings Again
  • Notes on Sources
  • Bibliography
  • Acknowledgements
Review by Booklist Review

Who are we if our memories are lost? As Gerrard ponders her father's final years and final battles with dementia, she tries to describe this journey through the loss and the costs of this degenerative disease from the perspectives of both the patient and caregiver. The author, who collaborates with her husband to write the popular Nicci French mysteries, also gives voice to dementia patients who are often silenced. She talks to others who have been touched by the disease, sharing their stories of diagnosis, shame, hidden symptoms, and attempts at normality as she recalls her own father's struggles. Gerrard shares the worries about age-related forgetfulness and how it may or may not proceed dementia. She describes dementia as a slow-growing condition that gradually robs patients of their pasts, while also sharing hopeful moments when caregivers connect with their loved ones through music and the arts. Gerrard has become an advocate, urging hospitals and nursing facilities to allow full access to caregivers of dementia patients, knowing that their presence brings much-needed comfort. This is a beautifully written, heartfelt look at aging, disease, and death that will both comfort and inspire readers who are living through or fearing such passages.--Candace Smith Copyright 2010 Booklist

From Booklist, Copyright (c) American Library Association. Used with permission.
Review by Publisher's Weekly Review

Gerrard, coauthor with Sean French of the thrillers published under the pseudonym Nicci French, takes on dementia in this vivid combination of memoir and investigative journalism. Moved to write about the condition by her father's decline into dementia, she interweaves her memories of him with the stories of other affected people-family members and caregivers as well as patients, and insights from doctors and researchers. The book traces the arc of the condition, from early chapters on facing up to and diagnosing it in its many forms-Alzheimer's being just the best-known-to a section on optimizing quality of life, to a discussion of care options in the advanced stages. Yes, she acknowledges, dementia is a terminal condition, the "sniper in the garden" and a "sneaky intruder in the house," but there are ways to live with it, and even live well. The arts, in particular, "support longer lives better lived," as Gerrard finds at the hospitals and homes now incorporating them. She, herself, after her father's death, launched John's Campaign to gain caregivers the right to stay with dementia patients in the hospital, just as parents do with their children. With dementia now afflicting one in six people over 80, Gerrard's informative and thought-provoking book is pertinent to all. Agent: Joy Harris, Joy Harris Literary. (Aug.) © Copyright PWxyz, LLC. All rights reserved.

(c) Copyright PWxyz, LLC. All rights reserved
Review by Kirkus Book Review

Memoir meets journalistic activism in this examination of dementia as an epidemic in an era of greater longevity.Though award-winning British journalist Gerrard has published novels under her own name (The Twilight Hour, 2014, etc.), she has reached a wider readership as half of the husband-and-wife duo who write a mystery series as Nicci French. Fans and newcomers alike will find this memoir revelatory and moving, as the author recounts her experience with her late father's dementia, which inspired her to co-found the advocacy group John's Campaign. "To explore dementia's meaning and its excruciating losses," she writes, "is to think about how far we as a society and as individuals are responsible for the suffering of others: what we owe each other, what we care about, what matters in the world we all share. Who matters." The most personal parts of her inquiry carry both an emotional and a philosophical charge. As more people live longer, more will suffer from dementia, a disease that affects not only the patient, but friends and families, the medical profession, the economy, and society as a whole. She reaches beyond her own experience for interviews with others facing similar challenges. Though presenting each as a continuous case history, she weaves multiple threads throughout the narrative, along with expert testimony and statistical support. Some readers may find it difficult to keep the specifics straight as Gerrard switches among families dealing with the disease, but the range of experiences and perspectives remains illuminating. The more the author seems like a journalistic observer, taking notes from the sidelines, the flatter the tone, though the best writing is indelible: "When did my father's dementia begin? We don't know. We'll never be able to put a finger on the danger spot: there. Like fog that streaks up stealthily, imperceptibly, until the foghorn booms and suddenly there are dark shapes looming at you out of shrouded darknessyou think you'll notice it, but often you don't. Then you can't."A beacon of a book amid a sea of darkness. Copyright Kirkus Reviews, used with permission.

Copyright (c) Kirkus Reviews, used with permission.