Mallko and dad

Gusti, 1963-

Book - 2018

"A father, Gusti, expounds upon life with his son Mallko, who has Down syndrome"--

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Subjects
Genres
Graphic novels
Biographies
Published
New York : Enchanted Lion Books 2018.
Language
English
Spanish
Main Author
Gusti, 1963- (author)
Edition
First English-language edition
Physical Description
1 volume (unpaged) : color illustrations ; 25 cm
ISBN
9781592702596
Contents unavailable.
Review by New York Times Review

it may be best to approach MALLKO AND DAD (Enchanted Lion, 120 pp" $19.95; ages 6 and up) as a picture book that's not really for children, or at least not for children to read on their own. It's a book that seems aimed at helping parents of children with special needs - and perhaps those children themselves, as well as their typically developing siblings - come to terms with their shared lives. Through a playful blending of words and drawings (conveyed in a smooth English translation by Mara Faye Lethem), the illustrator Gusti, who was born in Argentina and now lives in Barcelona, offers an autobiographical account - part sketchbook, part collage and part fragmentary story - of how he, his wife and their older son dealt with the fact that his younger son, Mallko, was born with Down syndrome. The sentence "I did not accept him" sprawls in giant, heavy, capital letters across a spread early in the book. Toward the end, typed small below an indecipherable but nonetheless endearing drawing presumably by Mallko, Gusti writes, "Kids with Down syndrome are an endangered species." These two sentences span the journey the book takes from Gusti's early fear and confusion over Mallko's condition to his blossoming awareness of how rare, precious and wonderful his son is. Sometimes Gusti's pictures feel almost manic, splashed all over the pages, which are treated like open canvases. There are photorealistic drawings in colored pencil, anxious pictures in pen, and countless cartoons and comic panels. Taken together, this assortment of styles represents a mind shuttling between feelings of love, fear, uncertainty, hope and gratitude - a dizzying cocktail that may feel familiar to many parents. Down syndrome, for Gusti, becomes an opportunity to examine and more deeply inhabit his love for his son, whose world, as Gusti illustrates it, is filled with wonder. For instance, amid a sketchbooklike series of drawings of Gusti and Mallko riding tricycles, Gusti writes, "Every day I tell myself: Don't forget to play." In one of those drawings, Mallko looks directly at the reader with a piercingly curious gaze, as if asking: "What's your problem? C'mon, let's do something fun." Dozens of images of Mallko drawn in every imaginable mood beckon the reader into his illuminated world. According to the last page, "Mallko is now 11 years old and he is very happy." That makes him the same age as my son, who has severe cerebral palsy and whose life has been nothing at all like the life I had imagined or hoped he would have. My son is very happy, too, and I am very grateful for him. Like Gusti's, my early years of parenting were filled with hope and dread. Yet, having gone on a journey like his, I find myself resisting what feels at times like Gusti's binary vision of special needs parenting. He seems to propose two poles: acceptance of a child, and the opposite of acceptance. I recall a million gray areas, and nothing as stark at the beginning as Gusti's "I could not accept him." In Gusti's drawings, I recognize countless shadings of what love feels like. When I read the book with my 7-year-old daughter, she said she thought it might even help special needs kids better accept themselves, though my son and, it seems, Mallko are blessed with unusually effortless love for their lives. They might not need that help. And most of the parents I know with special needs kids have developed their own fierce and subtle ways of understanding their own and their children's lives - they may find Gusti's terms difficult to accept. Then again, my resistance may be evidence of the power of the book. Perhaps I cling too defensively to the terms of my own journey, which, now, are precious to me; they're the ways I love my son. Eleven years ago, however, when I felt alone, worried and afraid to be hopeful, I would have been extremely grateful for this book. CRAIG MORGAN teicher is a poet and critic. His latest book is "We Begin in Gladness: How Poets Progress."

Copyright (c) The New York Times Company [July 11, 2019]
Review by Booklist Review

*Starred Review* Sometimes having kids is like making a drawing, Argentinian artist Gusti writes, it doesn't come out quite the way you were imagining it. It quickly becomes obvious that the kid he's referring to is his son Mallko, who was born with Down syndrome. At first I did not accept him, Gusti candidly admits, but time will change that, and it's soon obvious that he has come to love his son, whom he now calls the greatest. This unusual book offers a glimpse of their quotidian life together, along with the boy's mother and older brother, who loves his little brother unconditionally. In form, the book resembles a scrapbook with its text often hand-lettered and filled with the artist's naive illustrations, sketches, and the occasional small photograph showing Mallko playing, bathing, drawing, eating (or refusing) breakfast doing, in short, all of the daily things children do. The result is charming and touching, but it invites the question of who the book's audience will be. Though younger children will identify with Mallko, now 11, the book's attitude and style are quite sophisticated with obvious appeal to adults. Happily, however, the book's implicit theme is a universal one: the power and importance of love.--Michael Cart Copyright 2018 Booklist

From Booklist, Copyright (c) American Library Association. Used with permission.
Review by Publisher's Weekly Review

Deeply affecting and sometimes funny, this scrapbook-style memoir records Argentinian artist Gusti's journey toward unconditional love for his son, Mallko, identified as a child with Down syndrome shortly after his birth. Sketches and scribbly, brightly colored drawings alternate with interviews, narrative reflections, poems, and song lyrics, all sensitively translated by Lethem, chronicling the way Mallko conquers Gusti's heart. They reveal Gusti's fears and celebrate his growing discovery, with support from family and friends, of Mallko's skills and gifts (Mallko's mother declares, "He had every right to arrive as he did"). Mallko loves cars, mopping the patio, and his "freeze ray" powers: "Once you are frozen you have to wait for him to unfreeze you. The most effective method is a kiss." Gusti's early inner conflict may make this a tough read for younger readers-in one moment, he confesses "I DID NOT ACCEPT HIM," the words printed in huge black letters across two pages. But his naked honesty offers balance to his eventual understanding that "Mallko was already complete. And not only that: I realized he was great. The greatest." Ages 10-12. (Nov.) © Copyright PWxyz, LLC. All rights reserved.


Review by Kirkus Book Review

In a mixed-media account that won the BolognaRagazzi Award for Disability, Argentine illustrator Gusti (Half of an Elephant, 2006) relates how he learned to embrace his son's Down syndrome.When his second son, Mallko, was born with Down syndrome, Gusti confesses, "I DID NOT ACCEPT HIM." Fortunately, he gradually realizes that Mallko is "great. The greatest." And Mallko brims with ornerinessand ordinarinessas he pesters his parents, draws with his dad, and rocks out to the Red Hot Chili Peppers. In simple text and a collage of sketches, comics, photos, handwritten notes, and even a picture book within the book, Gusti candidly depicts the ups and downs of life with Mallko. Parents and siblings of disabled children will find a spectrum of emotions reflected in Gusti, and Gusti's wife and older son show how family members can support one another. Despite the simple language, Gusti's message of acceptance seems particularly, earnestly, addressed to parents. "Kids with Down syndrome are an endangered species," his penultimate line declares, the words fraught with both his son's preciousness and Down syndrome's correlation with abortion. Closing images of two adults with Down syndrome kissing act as a powerful affirmation. Adults should be prepared for some children to ask, "Why?" Occasionally, the original Spanish text appears alongside its English translation, and Mallko's marker drawings appear throughout. Gusti and his family present as white.Kids will enjoy meeting Mallko, but Gusti's funny, affectionate portraits of father and son may resonate most with parents and parents-to-be. (Graphic memoir. 9 up) Copyright Kirkus Reviews, used with permission.

Copyright (c) Kirkus Reviews, used with permission.