Childhood leukemia A guide for families, friends & caregivers
Book - 2018
Approximately 4,500 children and teens are diagnosed with leukemia in the United States and Canada each year. The illness and its treatment can have a devastating effect on family, friends, classmates, and the larger community. This newly updated edition of Childhood Leukemia contains the information and support parents need during this difficult time, including: New treatments such as immunotherapy, tailoring drugs dosages to children's genetic profiles, and ways to deal with side effects. Advice on how to cope with procedures, hospitalization, school, family, and financial issues. Tips for forming a partnership with the medical team. Poignant and practical stories from family members. Updated resources for medical information, emotio...nal support, and financial assistance. Parents who read this book will find understandable medical information and emotional support.
- Subjects
- Published
-
Bellingham, WA :
Childhood Cancer Guides
[2018]
- Language
- English
- Main Author
- Edition
- Fifth edition
- Physical Description
- xvi, 476 pages : illustrations ; 24 cm
- Bibliography
- Includes bibliographical references and index.
- ISBN
- 9781941089040
- Introduction
- 1. Diagnosis
- Signs and Symptoms
- Where Should Your Child Receive Treatment?
- Physical Responses
- Emotional Responses
- The Immediate Future
- 2. Overview of Childhood Leukemia
- Leukemia Is a Blood Disease
- Definition of a Blast
- When Leukemia Begins
- Types of Leukemia
- Who Gets Leukemia?
- Basic Genetics
- Best Treatments for Childhood Leukemia
- 3. Acute Lymphoblastic Leukemia
- ALL Is a Blood Disease
- Who Gets ALL?
- Signs and Symptoms
- Diagnosis
- Prognosis
- Treatment
- Information on Current Treatments
- 4. Acute Myeloid Leukemia
- AML Is a Blood Disease
- Who Gets AML?
- Signs and Symptoms
- Diagnosis
- Prognosis
- Treatment
- Information on Current Treatments
- 5. Juvenile Myelomonocytic Leukemia
- JMML Is a Blood Disease
- Who Gets JMML?
- Signs and Symptoms
- Diagnosis
- Prognosis
- Treatment
- Information on Current Treatments
- 6. Chronic Myelogenous Leukemia
- CML Is a Blood Disease
- Who Gets CML?
- Signs and Symptoms
- Diagnosis
- Prognosis
- Tyrosine Kinase Inhibitors
- Treatment
- Information on Current Treatments
- 7. Telling Your Child and Others
- Telling Your Child
- Telling the Siblings
- Notifying the Family
- Notifying Friends and Neighbors
- Notifying Your Child's School
- 8. Choosing a Treatment
- Treatment Basics
- Standard Treatment
- Clinical Trials
- Making a Decision
- The Entire Clinical Trial Document
- Protocol Changes
- 9. Coping with Procedures
- Planning for Procedures
- Pain Management
- Procedures
- 10. Forming a Partnership with the Medical Team
- Choosing a Hospital
- The Doctors
- Finding an Oncologist
- Types of Relationships
- Communication
- The Tumor Board
- Getting a Second Opinion
- Conflict Resolution
- Changing Doctors
- 11. Hospitalization
- The Room
- The Floor
- Food
- Parking
- The Endless Waiting
- Working with the Staff
- Staying with Your Child
- Preventing Mistakes
- Playing
- 12. Central Venous Catheters
- External Catheter
- Subcutaneous Port
- Peripherally Inserted Central Catheter
- Choosing Not to Use a Catheter
- Making a Decision
- Adhesives
- 13. Chemotherapy and Other Medications
- How Chemotherapy Drugs Work
- How Chemotherapy Drugs Are Given
- Dosages
- Different Responses to Medications
- Questions to Ask the Doctor
- Guidelines for Calling the Doctor
- Chemotherapy Drugs and Their Possible Side Effects
- Chemotherapy Drugs
- Prophylactic Antibiotics
- Colony-stimulating Factors
- Antinausea Drugs Used During Chemotherapy
- Drugs Used to Relieve Pain
- Complementary Treatments
- Alternative Treatments
- 14. Common Side Effects of Treatment
- Bed Wetting
- Changes in Taste and Smell
- Constipation
- Dental Problems
- Diarrhea
- Fatigue and Weakness
- Hair Loss
- Learning Differences
- Low Blood Cell Counts
- Mouth and Throat Sores
- Nausea and Vomiting
- Osteonecrosis
- Rehabilitation
- Serious Illnesses
- Skin and Nail Problems
- Steroid Problems
- Pets
- 15. Radiation Therapy
- Overview
- Children Who Need Radiation Therapy
- Questions to Ask About Radiation Treatment
- Radiation Therapy Facilities
- Radiation Oncologist
- Radiation Therapist
- Radiation Simulation
- Sedation
- Cranial Radiation
- Testicular Radiation
- Total Body Radiation
- Possible Short-term Side Effects
- Possible Long-term Side Effects
- 16. Stem Cell Transplantation
- When Are Transplants Necessary?
- What Is a Match?
- Types of Transplant
- Finding a Donor
- Choosing a Transplant Center
- Stem Cell Harvest and Storage
- The Transplant
- Emotional Responses
- Paying for the Transplant
- Complications after Transplant
- 17. Siblings
- Emotional Responses of the Siblings
- Sibling Experiences
- Helping Siblings Cope
- Positive Outcomes for the Siblings
- 18. Family and Friends
- Restructuring Family Life
- The Extended Family
- Friends
- 19. Communication and Behavior
- Communication
- Common Behavioral Changes in Children
- Common Behavioral Changes in Parents
- Improving Family Life
- 20. School
- Keeping the School Informed
- Keeping the Teacher and Classmates Involved
- Keeping Up with Schoolwork
- Helping Siblings
- Returning to School
- Avoiding Communicable Diseases
- After Treatment
- Federal Laws
- Individual Healthcare Plan (IHCP)
- Your Legal Rights (Canada)
- The Terminally Ill Child and School
- 21. Sources of Support
- Hospital Social Workers
- In-person Support Groups for Parents
- Online Support Groups for Parents
- Support Groups for Children with Cancer
- Support Groups for Siblings
- Hospital Resource Rooms
- Individual and Family Counseling
- Clergy and Religious Community
- Camps
- 22. Nutrition
- How Treatment Affects Eating
- What Kids Should Eat
- Making Eating Fun and Nutritious
- What Kids Really Eat
- Dietitian/Nutritionist
- Vitamin Supplements
- Parent Advice
- Feeding by Tube and IV
- 23. Insurance, Record-keeping, and Financial Assistance
- Coping with Insurance
- Keeping Medical Records
- Keeping Financial Records
- Deductible Medical Expenses
- Dealing with Hospital Billing
- Sources of Financial Assistance
- Miscellaneous Insurance Issues
- 24. End of Treatment and Beyond
- Emotions
- Last Treatment
- Catheter Removal
- Ceremonies
- What is Normal?
- Initial Follow-up Care
- Long-term Follow-up Care
- Treatment Summary
- 25. Relapse
- Signs and Symptoms
- Emotional Responses
- Goal Setting and Treatment Planning
- Making a Decision about Treatment
- Immunotherapy
- Summary
- 26. Death and Bereavement
- Transitioning from Active Treatment
- Hospice Care
- Dying in the Hospital
- Dying at Home
- Involving Siblings
- The Funeral
- The Role of Family and Friends
- Sibling Grief
- Parental Grief
- Appendices
- A. Blood Tests and What They Mean
- Values for Healthy Children
- Values for Children on Chemotherapy
- Common Blood Tests
- Your Child's Pattern
- B. Resource Organizations
- Service Organizations (United States)
- Service Organizations (Canada)
- Service Organizations (Australia)
- Camps
- Educational and Legal Support
- Financial Help
- Free Air Services (United States)
- Free Air Service (Canada)
- Free Air Service (Australia)
- Government Agencies
- Insurance
- Medications (low-cost or free)
- Stem Cell Transplantation
- Wish Fulfillment Organizations (United States)
- Wish Fulfillment Organizations (Canada)
- Wish Fulfillment Organizations (Australia)
- Hospice and Bereavement (United States)
- Hospice and Bereavement (Canada)
- Hospice and Bereavement (Australia)
- C. Books, Websites, and Support Groups
- How to Find Information
- Books
- Websites
- Online Support Groups
- Index
Review by School Library Journal Review