ADHD nation Children, doctors, big pharma, and the making of an American epidemic

Alan Schwarz, 1968-

Book - 2016

"A groundbreaking and definitive account of the widespread misdiagnosis of Attention Deficit Hyperactivity Disorder--and its serious effects on children, adults, and society"--

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Subjects
Published
New York : Scribner 2016.
Language
English
Main Author
Alan Schwarz, 1968- (-)
Edition
First Scribner hardcover edition
Physical Description
pages cm
Bibliography
Includes bibliographical references and index.
ISBN
9781501105913
  • Introduction
  • Prologue
  • Part 1.
  • Chapter 1. Fidgety Phil's Arithmetic Pills
  • Chapter 2. Dr. Conners
  • Chapter 3. From MBD to ADD
  • Chapter 4. Collision Course
  • Part 2.
  • Chapter 5. Kristin
  • Chapter 6. Jamison
  • Chapter 7. ADD for All
  • Chapter 8. The Hijacking
  • Chapter 9. There's Something They Know about Us
  • Part 3.
  • Chapter 10. Higher and Higher
  • Chapter 11. Less Than
  • Chapter 12. Bright College Days
  • Chapter 13. And Now, a Word from Our Sponsors
  • Chapter 14. Awakening
  • Chapter 15. Connection
  • Part 4.
  • Chapter 16. This Is Your Brain on Capitalism
  • Chapter 17. Coming Soon to a Doctor Near You
  • Chapter 18. Prescription
  • Epilogue
  • Acknowledgments
  • Appendix
  • Glossary
  • Notes
  • Bibliography
  • Index
Review by New York Times Review

IN THE LATE 1930s, Charles Bradley, the director of a home for "troublesome" children in Rhode Island, had a problem. The field of neuroscience was still in its infancy, and one of the few techniques available to allow psychiatrists like Bradley to ponder the role of the brain in emotional disorders was a procedure that required replacing a volume of cerebrospinal fluid in the patient's skull with air. This painstaking process allowed any irregularities to stand out clearly in X-ray images, but many patients suffered excruciating headaches that lasted for weeks afterward. Meanwhile, a pharmaceutical company called Smith, Kline & French was facing a different sort of problem. The firm had recently acquired the rights to sell a powerful stimulant then called "benzedrine sulfate" and was trying to create a market for it. Toward that end, the company made quantities of the drug available at no cost to doctors who volunteered to run studies on it. Bradley was a firm believer that struggling children needed more than a handful of pills to get better; they also needed psychosocial therapy and the calming and supportive environment that he provided at the home. But he took up the company's offer, hoping that the drug might eliminate his patients' headaches. It did not. But the Benzedrine did have an effect that was right in line with Smith, Kline & French's aspirations for its new product: The drug seemed to boost the children's eagerness to learn in the classroom while making them more amenable to following the rules. The drug seemed to calm the children's mood swings, allowing them to become, in the words of their therapists, more "attentive" and "serious," able to complete their schoolwork and behave. Bradley was amazed that Benzedrine, a forerunner of Ritalin and Adderall, was such a great normalizer, turning typically hard-to-manage kids into models of complicity and decorum. But even after marveling at the effects of the drug, he maintained that medication should be considered for children only in addition to other forms of therapy. Bradley's research was ignored for a couple of decades as psychoanalysis became dominant in the United States. But his discoveries laid the foundation for one of the most aggressive marketing campaigns in history, which succeeded not only in helping to transform the nascent drug industry into the multinational juggernaut known as Big Pharma, but in convincing parents, physicians and public health officials that 15 percent of American schoolchildren are sick enough that they would require powerful medication just to get through the day. This campaign (which would have horrified Bradley and his peers) is the subject of an important, humane and compellingly written new book called "ADHD Nation," by .Alan Schwarz, a reporter for The New York Times. The title of the book, of course, refers to attention deficit hyperactivity disorder: a constellation of behaviors and traits codified as a neurobiological illness in the bible of psychiatry, the Diagnostic and Statistical Manual of Mental Disorders. The boundaries of the A.D.H.D. diagnosis have been fluid and fraught since its inception, in part because its allegedly telltale signs (including "has trouble organizing tasks and activities," "runs about or climbs in situations where it is not appropriate" and "fidgets with or taps hands or feet," according to the current edition of the DSM) are exhibited by nearly every human being on earth at various points in their development. No blood test or CT scan can tell you if you have the condition - the diagnosis is made by subjective clinical evaluation and screening questionnaires. This lack of any bright line between pathology and eccentricity, Schwarz argues, has allowed Big Pharma to get away with relentless expansion of the franchise. Numerous studies have shown, for example, that the youngest children in a classroom are more likely to be diagnosed with A.D.H.D. Children of color are also at higher risk of being misdiagnosed than their white peers. One clinician quoted in the book more or less admits defeat: "We've decided as a society that it's too expensive to modify the kid's environment. So we have to modify the kid." Schwarz has no doubt that A.D.H.D. is a valid clinical entity that causes real suffering and deserves real treatment, as he makes clear in the first two sentences of the book: "Attention deficit hyperactivity is real. Don't let anyone tell you otherwise." But he believes that those who are disabled by the condition deserve a wider range of treatment options than an endless litany of stimulants with chirpy names like Vyvanse and Concerta. Disorders of attention were once thought to be relatively rare by experts, affecting only an estimated 3 percent of preadolescent children. But kids and teenagers are now diagnosed so routinely that getting a prescription for Ritalin or Adderall has practically become a standard rite of passage, particularly in the United States. And the diagnosis isn't just for children anymore: Its ever-expanding boundaries now encompass allegedly hyperkinetic infants and the distractible elderly. What's really going on? Influential patient-advocacy groups insist that only now is the true prevalence of A.D.H.D. finally being recognized after being drastically underestimated - akin to the spike in autism diagnoses once the narrowly defined condition was broadened into a spectrum in the 1990s. But Schwarz makes a convincing case that the radical expansion and promotion of A.D.H.D. has resulted in the label being applied in ways that are far beyond the needs of a historically underserved community, while non-pharmaceutical methods of treatment like cognitive behavioral therapy (which have been proved to complement the effectiveness of medication) are overlooked. While other books have probed the historical roots of America's love affair with amphetamines - notably Nicolas Rasmussen's "On Speed," published in 2008 - "ADHD Nation" focuses on an unholy alliance between drugmakers, academic psychiatrists, policy makers and celebrity shills like Glenn Beck that Schwarz brands the "A.D.H.D. industrial complex." The insidious genius of this alliance, he points out, was selling the disorder rather than the drugs, in the guise of promoting A.D.H.D. "awareness." By bankrolling studies, cultivating mutually beneficial relationships with psychopharmacologists at prestigious universities like Harvard and laundering its marketing messages through trusted agencies like the World Health Organization, the pharmaceutical industry created what Schwarz aptly terms "a self-affirming circle of science, one that quashed all dissent." In a narrative that unfolds with the momentum of a thriller, he depicts pediatricians' waiting rooms snowed under with pharma-funded brochures, parents clamoring to turn their allegedly underachieving children into academic superstars and kids showered with pills whose long-term effects on the developing brain (particularly when taken in combination) are still barely understood. In one especially harrowing section of the book, Schwarz traces the Icarus-like trajectory of Richard Fee, an aspiring medical student who fakes the symptoms of A.D.H.D. to get access to drugs that will help him cope with academic pressure. When he eventually descends into amphetamine psychosis, his father tells his doctor that if he doesn't stop furnishing his son with Adderall, he'll die. Two weeks after burning through his supply, Fee hanged himself in a closet. "ADHD Nation" should be required reading for those who seek to understand how a field that once aimed to ameliorate the behavioral problems of children in a broad therapeutic context abdicated its mission to the stockholders of corporations like Shire and Lilly. Schwarz is sounding an alarm for a fire that looks nowhere near abating. STEVE SILBERMAN is the author of "NeuroTribes: The Legacy of Autism and the Future of Neurodiversity."

Copyright (c) The New York Times Company [September 14, 2016]
Review by Booklist Review

Schwarz, a Pulitzer Prize-nominated investigative reporter for the New York Times who wrote more than 100 articles about concussions in the NFL, leaves no stone unturned as he documents the overdiagnosis of attention deficit/hyperactivity disorder. In fact, he interviews more than 1,000 doctors, parents, students, and researchers. Kids get pseudonyms to protect family relationships and sometimes for legal reasons. Schwarz tries to have fun when appropriate: one chapter title is Fidgety Phil's Arithmetic Pills, another is ADD for All. But good guys are few and far between. Students get diagnosed and are given Adderall to help them perform better, and then they become hooked. Pharmaceutical companies advertise heavily. ADHD medications were hawked like any other consumer product when the companies knew they were anything but, writes Schwarz. And teachers wildly overestimate how many students have ADHD. One questionnaire found that they support an ADHD diagnosis in more than one in five boys. This eye-opening book should be a hit with drug-industry skeptics and worried parents who want to read a well-reported, definitive guide to this misunderstood and overly medicated disorder.--Springen, Karen Copyright 2016 Booklist

From Booklist, Copyright (c) American Library Association. Used with permission.
Review by Publisher's Weekly Review

New York Times reporter Schwarz (Once upon a Game) shifts from sports injury, about which he wrote a Pulitzer-nominated series, to attention deficit hyperactivity disorder (ADHD) in this sweeping critique. He finds that the use of stimulants for an initially small number of unmanageable children with "minimal brain dysfunction" was "commandeered by Big Pharma," leading to 11% of American children, and a growing number of adults, being diagnosed with ADHD. Schwartz primarily blames the marketing of medications direct to consumers, despite the associated side effects and risks of addiction. The calm, incisive side of Schwarz's investigative style dominates as he traces the development of drugs, treatment protocols, and public messages over the last 40 years, but sensationalism overwhelms the reader in the cautionary tales of Jamison Monroe, who faked ADHD to maintain his Adderall addiction before being "scared straight" into founding treatment center Newport Academy, and pseudonymous Kristin Parber, who went from reluctant Ritalin user to alcoholic and addict. Nevertheless, Schwarz's grounding in the viewpoint of Dr. Keith Connors, a pioneering ADHD researcher turned medication skeptic, makes it impossible to confuse Schwarz's interest-exposing the role of drug companies in shaping a society-wide issue-with a disbelief in the concept of ADHD overall. Agent: David Black, David Black Agency. (Sept.) © Copyright PWxyz, LLC. All rights reserved.

(c) Copyright PWxyz, LLC. All rights reserved
Review by Library Journal Review

New York Times investigative reporter Schwarz takes an in-depth look at the diagnosis of attention-deficit hyperactivity disorder (ADHD) through the eyes of doctor Keith Conners, who discovered that Ritalin could help children with the condition. Ritalin was so successful in treating ADHD that the pharmaceutical industry took notice. Schwarz reveals how big pharma has led the way to what could be considered an ADHD epidemic in the United States, with one in seven children receiving a diagnosis. This rate is three times what experts in the field would expect to see if diagnostic tools were being used appropriately and medications prescribed judiciously. Schwarz cautions that ADHD is real and that symptoms can be successfully ameliorated by the appropriate use of medication; however, with for-profit companies leading the charge in an effort to manage ADHD with medication, many are being misdiagnosed. Schwarz presents a well-researched and easy-to-read history of the condition and the pharmaceutical industry's influence. VERDICT A solid choice for anyone who interacts with those who may or may not have ADHD, such as teachers, clinicians, and parents; readers with a diagnosis themselves will also appreciate. Suitable for libraries with large psychology collections. [See Prepub Alert, 3/14/16.]-Lisa Jordan, Johnson Cty. Lib., -Overland Park, KS © Copyright 2016. Library Journals LLC, a wholly owned subsidiary of Media Source, Inc. No redistribution permitted.

(c) Copyright Library Journals LLC, a wholly owned subsidiary of Media Source, Inc. No redistribution permitted.
Review by Kirkus Book Review

A troubling look at the systemic overdiagnosis of attention deficit hyperactivity disorder and a chilling analysis of the effect ADHD medications have on patients, especially children.New York Times investigative reporter Schwarz (Once Upon a Game: Baseball's Greatest Memories, 2007, etc.) begins this hard-hitting book by making sure readers understand that, despite the prevalence of false diagnoses, ADHD is a legitimate condition that affects some children and adults; in these cases, appropriately prescribed medication may work wonders. Howevera very significant howeverin the 50 years since ADHD was clinically defined, it has become, by far, the most misdiagnosed condition in American medicine. Stunningly, in some states, 30 percent of school-age boys are diagnosed, the majority of whom are put on powerful stimulants such as Ritalin or Adderall. While the intentions of the prescribing doctors may have some merit, the fact remains that physicians and pharmaceutical companies alike assure parents that ADHD drugs are safer than aspirin. The author pulls no punches in his in-depth portrayal of this falsehood and the prevalence of the drugs in schools and colleges across the nation. Adolescents routinely and casually abuse stimulants to such an extent that school officials often shrug their shoulders at the problem rather than instituting rules to protect students. Worse, Schwarz describes how doctors misconstrue the dangerous side effects of stimulants as evidence of other maladies and prescribe additional drugs such as anti-anxiety medication. Tragically, many kids become quickly addicted and fall into a downward spiral they are helpless to prevent. The author, while vehement in his arguments, is no alarmist; his facts are meticulously sourced, and he relies on numerous first-person narratives from patients, parents, doctors, and pharma reps to make his argument. In no uncertain terms, he states that without immediate action to reassess the status quo, countless patients may face dire consequences. In this powerful, necessary book, Schwarz exposes the dirty secrets of the growing ADHD epidemic. Copyright Kirkus Reviews, used with permission.

Copyright (c) Kirkus Reviews, used with permission.