The age of diagnosis How our obsession with medical labels is making us sicker

Suzanne O'Sullivan

Book - 2025

"From a neurologist and award-winning author of The Sleeping Beauties, a meticulous and compassionate exploration of how our culture of medical diagnosis can harm, rather than help, patients. I'm a neurologist. Diagnosis is my bread and butter. So why then would I, an experienced medical doctor, be very careful about which diagnosis I would pursue for myself or would be willing to accept if foisted upon me? We live in an age of diagnosis. The advance of sophisticated genetic sequencing techniques means that we may all soon be screened for potential abnormalities. The internet provides a vast array of information that helps us speculate about our symptoms. Conditions like ADHD and Autism are on the rapid rise, while other new categ...ories like Long Covid are driven by patients themselves. When we are suffering, it feels natural to seek a diagnosis. We want a clear label, understanding, and, of course, treatment. But is diagnosis an unqualified good thing? Could it sometimes even make us worse instead of better? Through the moving stories of real people, neurologist Suzanne O'Sullivan explores the complex world of modern diagnosis, comparing the impact of a medical label to the pain of not knowing. With scientific authority and compassionate storytelling, she opens up new possibilities for how we might approach our health and our suffering"--

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2nd Floor New Shelf 616.075/O'Sullivan (NEW SHELF) Due May 28, 2025
Subjects
Genres
Informational works
Instructional and educational works
Published
New York, NY : Thesis 2025.
Language
English
Main Author
Suzanne O'Sullivan (author)
Edition
First United States edition
Physical Description
xvii, 298 pages ; 24 cm
Bibliography
Includes bibliographical references (pages 267-284) and index.
ISBN
9780593852910
  • Author's note
  • Prologue
  • Introduction
  • 1. Huntington's Disease
  • 2. Lyme Disease and Long Covid
  • 3. Autism
  • 4. The Cancer Gene
  • 5. ADHD, Depression and Neurodiversity
  • 6. Syndrome Without a Name
  • Conclusion
  • Acknowledgments
  • Notes
  • Index
Review by Booklist Review

Making a medical diagnosis is one of the fundamental tasks all physicians are trained to do. It's like solving a puzzle with very high stakes and often with a high degree of difficulty. But are doctors generating too many diagnoses these days? Have patients become much more receptive to receiving them? Neurologist O'Sullivan (The Sleeping Beauties, 2021) examines the concerning rise of overdiagnosis and overmedicalization. Despite climbing numbers of people diagnosed with autism (1 in 36 American kids), prediabetes and Lyme disease (other health problems are often mistakenly ascribed to this infection), she counsels that "we are not getting sicker--we are attributing more to sickness." Fear and billing requirements are two possible forces behind the rush to apply medical labels to individuals. O'Sullivan adeptly integrates stories of patients and their symptoms into her discussion about cancer screenings, psychosomatic illness, "diagnostic creep," long COVID-19, Lyme disease, autism, ADHD, predictive genetic diagnosis, and depression. She points out how the line between health and illness can be blurry, how treating some correct diagnoses can result in more harm than good. O'Sullivan's insightful commentary convincingly warns that "we are becoming victims of too much medicine and that it is time to turn back the dial."

From Booklist, Copyright (c) American Library Association. Used with permission.
Review by Publisher's Weekly Review

An epidemic of overdiagnosis is causing patients to pathologize normal differences and overtaxing the medical system, according to this thought-provoking treatise. Neurologist O'Sullivan (The Sleeping Beauties) explains how new screening techniques and expanded disease parameters have spiked rates of such conditions as autism, Huntington's disease, and ADHD--risking, for mild cases, needless health anxiety, an overreliance on medication, and the "nocebo effect," where labeling the disease can actually produce symptoms. Meanwhile, time and money is wasted in treating people for cases "that would never have progressed" or "would have resolved spontaneously if left alone." At the root of the endless search for diagnoses--and medical institutions' willingness to provide them--O'Sullivan finds a nebulous mix of "physical suffering and personal struggles" that, given modern society's "general lack of caring institutions," end up driving patients to the medical system for answers. She intriguingly illustrates this phenomenon through a discussion of the self-diagnosis of long Covid, which has become so hazily defined that scientists struggle to study it. While O'Sullivan's argument has some paternalistic implications--well-intentioned efforts to withhold complex medical information can reduce patient choice, especially if new or alternative therapies become available--she makes salient points about the challenges of treating patients in a world where, despite scientific advances, "definite answers" about one's health are often elusive. This is sure to spark debate. (Mar.)

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