Dusty's trail Summit of Borneo
Streaming video - 2015
At the age of six, Dusty Brandom was diagnosed with Duchenne muscular dystrophy, a degenerative disease that affects 1 in every 3,500 boys born. While life expectancy varies in each case, those with the disease rarely live past their 20s. Dusty's family realized that their happy and playful child would suffer a long, progressively weakening condition until his heart and breathing muscles ceased to function. As a family, they united to learn as much as they could about the disease and to enjoy every moment in life, which eventually led Dusty to ask the question "how come there are no old people with Duchenne?" This inspired Dusty's mother, Catherine Jayasuriya, to form Coalition Duchenne in order to spread global awarenes...s and raise funding for research and a cure. With the support of other affected families, they decide to scale Mt. Kinabalu, a sacred 13,455-foot high mountain, on the Malaysian island of Borneo. This is their journey.
- Subjects
- Genres
- Video recordings for the hearing impaired
- Published
-
[United States] :
Cinema Libre Studio
2015.
- Language
- English
- Corporate Author
- Corporate Author
- Other Authors
- ,
- Online Access
- Instantly available on hoopla.
Cover image - Physical Description
- 1 online resource (1 video file (approximately 65 min.)) : sd., col
- Format
- Mode of access: World Wide Web.
- Audience
- Not rated.
- Access
- AVAILABLE FOR USE ONLY BY IOWA CITY AND RESIDENTS OF THE CONTRACTING GOVERNMENTS OF JOHNSON COUNTY, UNIVERSITY HEIGHTS, HILLS, AND LONE TREE (IA).